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Research Area
In my doctoral project I investigate experiences of living with severe Spinal muscular atrophy (SMA) (Type I-II). SMA affects children and the disease is characterized by progressive muscle weakness. No present curative treatment is available. Affected families face a life with daily care and nursing, recurrent hospitalizations and difficult decisions regarding the child's treatment, including the decision if/when respiratory support should introduced. The project includes both the parents' experiences of care, and the child´s and the family’s experience of living with the disease. With increased knowledge, the hope is to contribute to a better care for ill children and their families.
Degrees
2014 CNS in Children & Youth Health Care
2014 MSc in Nursing
2010 RN
Supervisors
Professor Ulrika Kreicbergs, Ersta Sköndal Bräcke University College
Associate Professor. Malin Lövgren, Ersta Sköndal Bräcke University College
Professor Thomas Sejersen, KI
Publications
Click the titles in the list to view in DiVA
Senast uppdaterad: 2020-06-02.
Contact
Ersta Sköndal Bräcke University College
Phone: +46 8 555 050 00
Questions about studies: utbildningsstod@esh.se
Mail: info@esh.se
Campus Bräcke
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Box 21062, SE-418 04 Göteborg
Fax: +46 31 53 15 51
Campus Ersta
Stigbergsgatan 30
Box 11189, SE-100 61 Stockholm
Fax: +46 8 555 050 60
Campus Sköndal
Herbert Widmans väg 12
Box 441, SE-128 06 Sköndal
Fax: +46 8 555 051 65
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