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Elin Hjorth

Palliative Research Centre

TitLE:

PhD Student

PHONE:

+46-76-636 51 01 

E-POST:

Address: Ersta Sköndal Bräcke University College
P.O. Box 11189, SE-100 61 Stockholm, Sweden

VISITING ADDRESS:

Folkungatatan 121

Research Area

In my doctoral project I investigate experiences of living with severe Spinal muscular atrophy (SMA) (Type I-II). SMA affects children and the disease is characterized by progressive muscle weakness. No present curative treatment is available. Affected families face a life with daily care and nursing, recurrent hospitalizations and difficult decisions regarding the child's treatment, including the decision if/when respiratory support should introduced. The project includes both the parents' experiences of care, and the child´s and the family’s experience of living with the disease. With increased knowledge, the hope is to contribute to a better care for ill children and their families.

Degrees

2014 CNS in Children & Youth Health Care
2014 MSc in Nursing
2010 RN

Supervisors

Professor Ulrika Kreicbergs, Ersta Sköndal Bräcke University College
Associate Professor. Malin Lövgren, Ersta Sköndal Bräcke University College
Professor Thomas Sejersen, KI

Publications

Click the titles in the list to view in DiVA


Elin Hjorth, Ulrika Kreicbergs, Thomas Sejersen, Ulla Werlauff, Jes Rahbek, Malin Lövgren (2021). Parents’ advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups
Elin Hjorth, Hanna Gabrielsson, Lilian Pohlkamp, Viktoria Wallin (2021). Patientorganisationer som företräder riskgrupper under covid-19-pandemin: förändringar i organisation och relation till andra aktörer
Suddenly we have hope that there is a future": Two families’ narratives when a child with spinal muscular atrophy receives a new effective drug " target="_blank"> Elin Hjorth, Malin Lovgren, Ulrika Kreicbergs, Thomas Sejersen, Eric Asaba (2021). "Suddenly we have hope that there is a future": Two families’ narratives when a child with spinal muscular atrophy receives a new effective drug
Lilian Pohlkamp, Viktoria Wallin, Elin Hjorth, Hanna Gabrielsson (2021). Ömsesidiga hjälporganisationer i Sverige uppvisar resiliens under covid-19-pandemin
Elin Hjorth (2020). Experiences of care and everyday life in a time of change for families in which a child has spinal muscular atrophy [Fulltext]
Elin Hjorth, Ulrika Kreicbergs, Thomas Sejersen, Jørgen Jeppesen, Ulla Werlauff, Jes Rahbek, Malin Lövgren (2018). Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved.
Elin Hjorth, Ulrika Kreicbergs, Thomas Sejersen, Malin Lövgren (2018). Parents' advice to healthcare professionals working with children who have spinal muscular atrophy

Senast uppdaterad: .

Contact

Ersta Sköndal Bräcke University College
Phone: +46 8 555 050 00
Questions about studies: utbildningsstod@esh.se
Mail: info@esh.se 

Campus Bräcke
Diakonivägen 10A
Box 21062, SE-418 04 Göteborg
Fax: +46 31 53 15 51    

Campus Ersta
Stigbergsgatan 30
Box 11189, SE-100 61 Stockholm
Fax: +46 8 555 050 60

Campus Sköndal
Herbert Widmans väg 12
Box 441, SE-128 06 Sköndal
Fax: +46 8 555 051 65

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