Department of of palliative care research
Department of Health Care Sciences
Campus Ersta
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Title: |
Professor |
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Phone: |
08-555 050 92 |
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Mobile: |
0768-93 10 12 |
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E-mail: |
britt-marie.ternestedt(at)esh.se |
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Address: |
P.O. Box 111 89 |
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Visiting address: |
Folkungagatan 121 |
Main area of research
My main area of research is palliative care, especially with focus on the meaning of a good death from the perspectives of patients and their relatives. Accordingly, the aim is to build knowledge about ways, in which health care can enable patients to live their last period of life as best possible in relation to their illness and life situation, their values and preferences, and in relation to the resources of health care. As a result of this research, models can be developed, that promote person centered and co-created care, where patient participation is emphasized. One example is “The model of six S’s”, which is developed by researchers in collaboration with clinical nurses. Today the model is used in several palliative care clinics and nursing homes in Sweden.
Another research area of my interest is concerned with the very beginning of life and what it´s like growing up with chronic disabilities like for example congenital heart disease, and how this affects the family.
Selected publications
End of life care
Ternestedt BM. (2005) Expressed desire for hastened death by patients with advanced cancer had several meanings and uses. Evidence-Based Nursing, 8(3), 96.
Ternestedt BM & Franklin LL. (2006) Ways of relating to death: views of older people resident in nursing homes. International Journal of Palliative Nursing, 12(7), 334-340.
Karlsson ILK, Ehnfors M, & Ternestedt BM (2006) Patient characteristics of women and men cared for during the first 10 years at an inpatient hospice ward in Sweden. Scandinavian Journal of Caring Sciences, 20(2), 113-121. Ternestedt BM (2006)
Patients and their primary care providers identified 4 goals of life sustaining treatment. Evidence-Based Nursing, 9(3), 95. James I, Andershed B, & Ternestedt B. (2007)
A family’s beliefs about cancer, dying, and death in the end of life. Journal of Family Nursing, 13(2), 226-252. Öhlen J, Andershed B, Berg C, Frid I, Palm C, Ternestedt B, & Segesten K. (2007)
Relatives in end-of-life care – part 2: a theory for enabling safety. Journal of Clinical Nursing, 16(2), 382-390. Dwyer L. Nordenfelt L. & Ternestedt B. (2008) Three nursing home residents speak about meaning at the end of life. Nursing Ethics, 15(1), 97-109.
Ek K, & Ternestedt B. (2008) Living with chronic obstructive pulmonary disease at the end of life: a phenomenological study. Journal of Advanced Nursing, 62(4), 470-478.
Tishelman C, Bergenmar M, Bernhardson B-M, Blomberg K, Börjeson S, Foderus H, Leveälahti H, Sahlberg-Blom E, & Ternestedt B-M. (2008) Using undergraduate nursing students as mediators in a knowledge transfer programme for care for patients with advanced cancer. European Journal of Cancer Care, 17(3), 253-260.
Karlsson ILK, Ehnfors M, & Ternestedt B. (2008) Five nurses' experiences of hospice care in a long-term perspective. Journal of Hospice & Palliative Nursing, 10(4), 224-232.
Österlind J, Hansebo G, Lantz G, & Ternestedt B-M. (2008) Pathways in end-of-life care for older people: care managers’ reasoning. International Journal of Palliative Nursing, 14(9), 420-425.
Cronfalk BS, Strang P, & Ternestedt B. (2009) Inner power, physical strength and existential well-being in daily life: relatives’ experiences of receiving soft tissue massage in palliative home care. Journal of Clinical Nursing, 18(15), 2225-2233.
Dwyer L, Andershed B, Nordenfelt L, & Ternestedt B. (2009) Dignity as experienced by nursing home staff. International Journal of Older People Nursing, 4(3), 185-193.
Österlind J, Hansebo G, Lindqvist R, & Ternestedt BM. (2009) Moving on a roundabout at the end of life -What counts? Waiting times for transfer to sheltered accommodation for older people in Sweden Health Policy, 91(2), 183-188.
James I, Andershed B, & Ternestedt B-M. (2009) The encounter between informal and professional care at the end of life. Qualitative Health Research, 19(2), 258-271.
Cronfalk B, Strang P, Ternestedt B, & Friedrichsen M. (2009) The existential experiences of receiving soft tissue massage in palliative home care-an intervention. Supportive Care in Cancer, 17(9), 1203-1211.
Other life cycle related publications
Jackson K, Ternestedt BM, Magnuson A, & Schollin J (2006) Quality of care of the preterm infant – the parent and nurse perspective. Acta Paediatrica, 95(1), 29-37.
Jackson K, Ternestedt BM, Magnuson A, & Schollin J. (2007) Parental stress and toddler behaviour at age 18 months after pre-term birth. Acta Paediatrica, 96(2), 227-232.
Ekwall E, Ternestedt B-M, & Sorbe B. (2007) Recurrence of ovarian cancer – living in limbo. Cancer Nursing, 30(4), 270-277.
Wall K, Oddsson H, Ternestedt B, Jonzon A, Nylander E & Schollin J. (2007) Thirty-year electrocardiographic follow-up after repair of tetralogy of Fallot or atrial septal defect. Journal of Electrocardiology, 40(2), 214-217.
Blomberg K, Ternestedt B, Törnberg S, & Tishelman C. (2008) How do women who choose not to participate in population-based cervical cancer screening reason about their decision? Psycho-Oncology, 17(6), 561-569.
Håkanson C, Sahlberg-Blom E, Nyhlin H, & Ternestedt B. (2009) Struggling with an unfamiliar and unreliable body: the experience of irritable bowel syndrome. Journal of Nursing and Healthcare of Chronic Illness, 1(1), 29-38.
Blomberg K, Forss A, Ternestedt B, & Tishelman C. (2009) From 'silent' to 'heard': professional mediation, manipulation and women's experiences of their body after an abnormal Pap smear. Social Science & Medicine, 68(3), 479-486.
Research reports/related books
Ternestedt B. (2007) Forskning som speglar vården i livets slutskede: sammanställning av aktuell forskning. Expertuppdrag. Stockholm: Socialstyrelsen
Book chapters
Kallenberg K, & Ternestedt B-M. (2005). Självbestämmande i dödens närhet. I: Beck-Friis B, & Strang, P (red) Palliativ medicin. 3. uppl. Stockholm: Liber. S. 81-89.
Ternestedt B-M. (2005). Hjälp att leva livet ut. I: Westrin C, & Nilstun T (red.) Att få hjälp att dö: synsätt, erfarenheter, kritiska frågor. Lund: Studentlitteratur. P. 73-88.
Ternestedt B-M (2007). Att få vara den man är i dödens närhet. I: Silfverberg G. (red.) Hemmets vårdetik. Om vård av äldre i livets slutskede. Lund: Studentlitteratur. S. 147-164.
Silfverberg G, & Ternestedt B. (2007) Hemmet och vårdetiken. I: Silfverberg G. (red.) Hemmets vårdetik. Om vård av äldre i livets slutskede. Lund: Studentlitteratur. S. 17-30.
Ternestedt B-M. (2009) A dignified death and identy-promoting care. In: Nordenfelt L. (red) Dignity in care for older people. Chichester, U.K.: Wiley-Blackwell. P. 146-165.
Ternestedt B & Norberg A. (2009) Omvårdnad ur ett livscykelperspektiv. I: Friberg F, & Öhlén J. (red) Omvårdnadens grunder. Perspektiv och förhållningssätt. Lund: Studentlitteratur. S. 29-66.
Norberg A & Ternestedt BM. (2009) Omvårdnad som huvudområde i sjuksköterskeutbildningen. I: Östlinder G, Söderberg S, & Öhlén J. (red) Omvårdnad som akademiskt ämne: rapport från arbetande konferens. Stockholm: Svensk sjuksköterskeförening. S. 31-40.
Other articles
Ternestedt B-M (2005). Barn med medfödda hjärtfel. Vad säger den psykosociala forskningen? Tidskriften Hjärtebarnet. Jubileumsnummer.
